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Shaping Canada’s
Health Data Future
Together
OurHealthData is Canada’s first mass public movement for health data, bringing together patients, caregivers, families, communities, healthcare providers, researchers, and advocates around a shared vision of people-centred health data governance.
Mission
To facilitate meaningful public engagement in the development of Canadian guidelines that ensure health data in Canada is accessible to patients, healthcare providers, and other users, and is collected and managed in a transparent, responsible, patient-friendly, and efficient manner.
Vision
A Canada where the Canadian public and other key users play a central role in shaping andunderstanding how healthcare data is managed, accessed, and used.
Read Our Recent Work
OurHealthData supports Bill S-5 as an important step in strengthening Canada’s digital health infrastructure. Bill S-5 holds the promise of helping create a more connected and accessible system. To realize these benefits, we believe that implementation should centre on patient needs, equity, transparency, accountability, and genuine engagement with patients, families, caregivers, and communities who experience and navigate Canada’s health system every day.
First Nations Principles of OCAP™
